FYI

REGISTER BASED RESEARCH 2023 5.0/1.0 ECTS

Target group: PhD students and postdoctoral researchers Funded by Health and Biosciences Doctoral Programme (HBS-PD) Lectures are held in English (discussions in English or Finnish)

CONTENT AND COURSE PROGRAM (small changes possible) Wednesday 13 December 2023 8:20-15.40 remotely by using Zoom 8.20-8.30 Introduction to the course, Outi Kanste Prof. 8.30-10.00 Registers as data source in Finland & planning the register-based research: process, ethical and legal issues Mika Gissler, research professor, THL 10.00 -10.10 Break 10.10-11.30 Secondary use of health and social data: the Data Permit Authority Findata and the secure processing environment Kapseli Peija Haaramo, Chief Metadata Specialist, Social and Health Data Permit Authority (Findata) 11.30-12.00 Lunch break 12.00-13.00 Utilization of large data sets: a case for maternal health research Reeta Lamminpää, PhD, University Researcher, Department of Nursing Science, University of Eastern Finland 13.00 -13.15 Break 13.15-14.15 Northern Finland Birth Cohorts, opportunities and challenges in research Minna Ruddock, research director, Infrastructure for Population Studies, Northern Finland Birth Cohorts, Faculty of Medicine, University of Oulu 14.15-14.30 Break 14.30-15.30 Hospital data lakes in register-based research Outi Laatikainen, MSc. (pharm), PhD, University of Oulu, Oulu University Hospital 15.30-15.40 Closing of the day, Outi Kanste Prof.

Registration at the latest 22.11., registration from the link https://link.webropolsurveys.com/S/FC1383B6E74EFBF8 or minna.ylisirnio@oulu.fimailto:minna.ylisirnio@oulu.fi

ECTS study credits: 1) 5.0 ECTS: preliminary reading, lectures, and protocol as an independent work (an individual learning assignment), active participation (minimum 80%) in lectures. This part is possible for students from the Research Unit of Health Sciences and Technology. or 2) 1.0 ECTS: preliminary reading, lectures, active participation (minimum 80%) in lectures, preparation of a summary. This part is possible for all students.

Assessment: Pass/Fail